Inherited disorders, also referred to as genetic disorders, are the result of gene mutations that have been passed on from parent to child. One such disorder is cystic fibrosis (CF). Cystic fibrosis is a disorder that affects cells that produce secreted fluids including sweat, mucus, and digestive juices. Specifically, the cystic fibrosis transmembrane conductance regulator (CFTR) gene mutates a type of protein that controls the movement of salt in and out of cells. The disorder makes these fluids thick and sticky when they are supposed to be smooth and slippery. Because of this, these fluids can act as stoppages rather than the lubricants they are meant to be. This can lead to damage of the digestive system, lungs, and almost every organ within the human body.
Cystic Fibrosis is one of the most common inherited disorders that limit quality and expectancy of life, particularly in Caucasians. In Brazil itself, it is estimated that 1 in 10,000 babies are born with CF (Scielo Brazil). That means in 2020 alone, approximately a staggering 28,591 babies in Brazil were born with CF. These patients will require a lifetime of care, and often treatment of CF can be a complex matter, particularly in lower socioeconomic regions.
The treatment of patients with CF comprises a mixture of continuous medications, nutritional supplements, and extensive physiotherapy. Because it affects so many parts of the body, the symptoms of the disorder can include wheezing, persistent coughs, vulnerability to respiratory infections, sinus inflammation, and intolerance of exercise. This is not to mention digestive symptoms, such as difficult weight control, greasy foul-smelling stool, intestinal blockages, and chronic bowel constipation. All these symptoms can lead to life threatening complications and have to be monitored closely. Although modern medical innovations have greatly improved the quality and expectancy of life to the point where it is possible for these patients to live normally, it may still be a lifelong struggle that requires constant care and attention. Digital health solutions can serve as an aid in managing a relatively normal life with disorders such as CF.
Care.Wallet is a powerful tool that has the ability to have everything patients may need for successfully managing their health. If experiencing unexpected symptoms, a patient can book an appointment with a few clicks directly in the App. If a patient needs a ride to the facility, Care.Wallet has got them covered with a medical transportation solution embedded. If it’s not possible to have an in-office visit, Care.Wallet allows for booking online appointments via Global Telehealth Exchange.
With Care.Wallet the patient doesn’t have to worry about preparing for the appointment, as all their previous medical records are securely stored in his Care.Wallet and can be shared with all members of their care team in real-time. On top of that, Care.Wallet allows for symptom recording and management. Armed with all necessary the information, medical professionals can better evaluate the health condition of the patient and diagnose the problem. Prescriptions and referrals can be easily managed within the App as well. Care.Wallet has a comprehensive feedback function, called “How Are You Feeling Today” (HAYFT) Cards, that allows the patient to stay in touch with their care provider and report any changes to their health condition. In addition, the Care.Circle functionality provides an opportunity for the patient to have health information exchanged between all care professionals involved in their treatment. Family and friends can be invited to join their Care.Circle as well to support the patient in their recovery and stay updated about their current health situation.
Care.Wallet is a powerful health management tool designed to offer a new improved standard of care and will improve the way healthcare works by putting patients in control of their health management. If you enjoyed this article, do take a look at our previous article Complex Regional Pain Syndrome in Australia.
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